When considering the psychological effects of myotonia congenita, it is important to remember that the sufferer may experience a dichotomy between severe physical and emotional effects and a minimisation of the symptoms that they have. This minimisation can be the result of the aforementioned cycle in “problems with diagnosis“.
– isolation: (sport inclusion / feeling misunderstood / needing help, but feeling that nobody understands their problem and/or gives it sufficient importance or knows how to help)
– lack of confidence: (sport inclusion / new activities – uncertainty of symptoms – effect on planning to do things)
– vulnerability: (can I move out of danger? / children playfighting / friends nudging, etc. / queueing – getting on a bus)
– frustration / anger: (negative effect on relationships / inability or lack of confidence fulfilling daily tasks, duties)
– lack of self-realisation: (not being able to perform what they would like to do and as a result preventing them from becoming the person they would like to be: an active, dynamic friend, mother, father / provide help and assistance to others)
– conditioned behaviour: behaviour patterns and habits that have grown out of either an embarrassment and a desire to hide symptoms from others, or to avoid certain situations where the person may feel insecure. These consequently condition and limit the person’s life and experiences.
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